The Lomas Boys

August 2012

Rich & Sammy - Age 5

1st Annual Sammy's Run

May 2009

 

"Sammy's Story"

Rich & Sammy Lomas

941.412.8762

Team Lomas

Phelan-McDermid Syndrome Foundation

Email Me

 

Sammy & Daddy listening to Team Hoyt & Gasparilla Race 2008

 

Started with Team Hoyt at the 7 Mile Falmouth Road Race, Cape Cod, Mass

 

A Gulf Coast Journal: July 2011

"Sammy's Story"

We knew about Sammy's condition prior to his birth. Not much was known about it in 1994.  He was the 8th person in the world diagnosed with it and the first one in utero.  At the time, the diagnosis was the technical name "22q13 deletion syndrome".

Another complication was the fact that he was born premature (we almost lost him in the hospital twice, but he definitely was a fighter) . He was in the hospital for about 4 months before he was allowed to come home. He weighed 2 lbs. and 4 ounces and was 13 inches long. We lived in Naples (FL) at the time, and Sue ended up being admitted to Arnold Palmer Hospital in Orlando. I was working in Caracas,Venezuela. So we made "home" for the next 4 months at a place they set up for extended housing (similar to the "Ronald McDonald House). At that time (after 6 weeks), we didn't  know how long he would be in the hospital.  So unfortunately, I had to return to work. So Sue stayed in Orlando and stayed with Sam around the clock.  And I flew in to Orlando on Friday nights and flew back out on Monday mornings, back to work it Caracas.

They had to take him early because I almost lost Sue at that time, she developed "help syndrome". If they didn't deliver immediately, I could have lost both of them. But that was not to happen as God certainly had plans for us !!!
 

~ Rich Lomas

Home